Tuesday, February 16, 2016

Feature Story News

Extra! Extra! 
Read all about it!!!

Or watch it, anyway.

About a week or so ago I received an email from a reporter in Washington D.C. 

Hi Jenny and Marcus - I came across your story, and that of Samantha, through the Foundation for Children with Microcephaly. I'm writing from Feature Story News in Washington DC - we make TV news for multiple English language channels around the world. While we are focusing strongly on the Zika virus at present we want to better understand the link with microcephaly but also (and absent from the coverage so far) better explain what a diagnosis of microcephaly means for children and their parents and how the condition is managed; I saw physical therapy was one aspect looking at your blog? If you would consider sharing your and Samantha's experience on camera please let me know. Best regards

Of course we'd be willing to help out, but see...we're not in DC. We're in California, Bay Area. That wasn't a problem for them. Within the day I was contacted by Rachel Silverman and we set up a time for her to come and visit our family. 

Yesterday Rachel came over. With her was Patrice, the filmer who flew up from LA that afternoon. They spent about 3 hours with us capturing different situations, talking with the kids, playing, and then interviewing both me and Marcus. Though I'm self conscious about what I probably look like and of course after the fact I wish I had said different things, we had a good time as a family. The kids were great and generally happy. Sammy was fun. And all in all, I'm just really glad that through our experiences we may be able to help others along their own journey.

The story will be done soon and they will send us a link to it when it's ready. I would have never imagined our life involving so many people from all over the world, but boy am I grateful for it!

 Sammy's a fan of Rachel's elephant sounds.

I felt a bond with Patrice. It was later that she told me that she has an aunt with down syndrome and could relate to a lot of what I said about the blessing of having special needs in our life. How grateful I am that someone with such a sensitivity and true love for the topic was able to capture our family on film. 

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